Get your Kleenex ready

I just had to share this awesome video created by a young adult survivor of CHD (specifically Tetralogy of Fallot). He is a musician from Australia, currently living in Nashville to pursue his career. In all the little children's faces I saw Luke, "then" and "now", and thanked God that so many heart babies now have a chance at a full and abundant life.

Click on the video screenshot to watch the video.

Baby Alex doing great!

I got a chance to see Alex in the PICU on Saturday and was able to visit with Dana (Alex's mom) again this morning. Alex is doing FANTASTIC! He is four days post-surgery and already has the ventilator, all three chest tubes, pacer wires, and arterial line removed. He is on a bit of oxygen through a nasal cannula and has a small amount of fluid on his lungs, but overall he is moving through his recovery like a champ. Keep it up, Alex!

Ever feel like this? I do ...

UPDATE: Besides being more independent and opinionated during the day, Luke has also had trouble the last two weeks with bedtime and night wakings. Ever since we got the okay to let him sleep through the night without food at 14 months, he has been a dream sleeper. After stories and prayers, he rolls right over in his crib and falls fast asleep. The last couple weeks, however, he has cried when we put him down and keeps up the tears for about 45 minutes. Awful! Well, I am happy to report that tonight he went to bed tonight without a whimper. I think God knew we needed that little bit of encouragement! Tomorrow night might be a different story, but we're going to go kick up our feet, put some ice on our black eyes and enjoy the quiet for tonight!

*****

ORIGINAL POST: We have had an interesting past three weeks with Luke. We have always described him as strong-willed and sure of what he wants, but those characteristics have always been fairly easy to rein in. In the past couple of weeks, Luke has gotten stronger, louder and more defiant. After that sentence, I want to make sure everyone knows the shiner is not a result of the above trends. =)

After scouring books, calling friends and watching discipline DVD's, Rog and I are reassured that Luke is not a little monster without the capability of empathy or obedience (my fear), but a — you guessed it — toddler. So, we enter toddlerhood armed with the time-out stair, the "ignore the behavior and walk away" tactic, and lots of prayer. Discipline is hard! Hardest is being a consistent disciplinarian. Especially when you aren't seeing a whole lot of progress. But I am reminded by many who have survived this phase that the hard work will bear fruit.

I have been a part of BSF (Bible Study Fellowship) the past several years and this year we are studying the life of Moses. Through Moses' life, I am seeing in a new way God's patience with his people, and his promise of ever-present help. You often hear of how Moses resists God's call for him to go to Pharoah to bring His people, the Israelites, out of their oppression in Egypt (Exodus 3 and 4). But I didn't realize that Moses resists God four times. And all four times, God patiently walks Moses through his hesitancy.

Moses' final argument, "O Lord, I have never been eloquent, neither in the past nor since you have spoken to your servant. I am slow of speech and tongue" echoes a bit of how I have been feeling in this new phase of parenthood. I do not always feel equipped to train Luke up to love the Lord and to honor his mom and dad, to serve others before himself and to long to do what is right. But how God answers Moses' concern is exactly how He answers my concerns: "The LORD said to him, 'Who gave man his mouth? Who makes him deaf or mute? Who gives him sight or makes him blind? Is it not I, the LORD? Now go; I will help you speak and will teach you what to say.'"

Raising Luke is not about how good or not good I am as a mom. Raising Luke is about relying on God's wisdom and His goodness in generously giving that wisdom to Rog and me when we ask.

So, with God as our help, we forge ahead into this strange land of toddlerhood, trusting that all three of us will come out on the other side with nothing more than a black eye. =)

Oh, you're wondering how Luke got his black eye? Wrestling with Papa and Nonna. How I love boys.

Two more smelly photos and one handsome boy

Important to get the skunk from all angles!


Lil' Stinker with Mama and Auntie Jenny

Baby Alex

We were connected with an awesome family through our cardiologist's office and their baby boy, Alex, will be undergoing the Glenn and DKS (his first open-heart surgery and the same two procedures Luke had done last August) this Thursday at Mary Bridge Children's Hospital. Please pray for this family and that Alex would recover beautifully and quickly from this surgery.

Go, Alex, go!