Wednesday, May 12, 2010

Sharing the load

I have talked with enough heart parents to know I can make this blanket statement: There is NOTHING that means more to families with these special kiddo's than the positive thoughts thought and the prayers prayed through the ups and downs of this journey. Like the lame man's friends who carried him for miles, who let nothing — crowds or a tiled roof — stop them from their purpose of bringing this man to Jesus, our friends and family make this road so much more travel-friendly.

All that to say that Roger and I would love your thoughts and prayers for Luke's cardiology appointment tomorrow morning. It has been five months since we have seen what his little ticker is doing and I am a bit more nervous than usual. We'll see tomorrow if it's mother's instinct or mother's paranoia, but I just feel like something has changed these past months. Luke is still his happy little firecracker self, just a slightly more winded version. Maybe he's outgrown his Enalapril dose? Maybe it's just a matter of Luke's heart having to work harder as he grows? Maybe he really does need his diuretic? It will sure be nice to get some information tomorrow.

And, your prayers for Luke's cooperation at " Dr. Chris' " are ALWAYS appreciated!

He is getting pretty savvy about doctor appointments and what that all means for him. Yesterday, when we went up to Children's, he had 101 questions about what Maddie was doing, why couldn't we see her, etc. I told him, "We can't see Maddie because she's back with all the nice doctors and they are taking care of her and her heart." Luke accepted my answer, then followed with, "Oh, Maddie's getting her flu shot?" My son has been through two open heart surgeries and his biggest concern is with flu shots! I love it.

Thank you everyone!

*** This picture was added just cuz it's cute ***

8 comments:

  1. Love the cute pic! We'll be praying for Luke tommorrow- and you guys too!

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  2. Jesse,
    We all prayed for Luke just now when we were putting the kids to bed! Keep us updated afterward!
    Heart hugs,
    Pam

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  3. We'll keep him in our prayers. Love the picture!

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  4. We'll definetly be praying for a great cardiology visit!

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  5. Saying a little prayer for Luke right now...let us know how it goes today. It was so great getting to see you and Luke :) Thanks again for coming up to visit us!

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  6. We'll do. He'll probably do fine and if he's happy, he's not in critical condition, right?!;-) Easier said than done for a heart mom. Take care.
    Angie

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  7. We'll do. He'll probably do fine and if he's happy, he's not in critical condition, right?!;-) Easier said than done for a heart mom. Take care.
    Angie

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